I'm fairly bionic. I have used a CPAP since 1999, a power chair since July 2006, and just got a breast prosthesis after being diagnosed with breast cancer and having a mastectomy in April of this year. The surgery did remove my disease and I am now disease free, but cancer hangs around in your medical history forever
Dealing with other people's questions
This is a question for all of you who have visible bionic devices.
About a month ago, 3kitties and I were somewhere when this lady asks me what happened to my leg. I was wearing shorts at the time so my AFO was clearly visible. I was totally shocked that a complete stranger would ask about it when she probably had a million other things to think about. I told her that I needed the support that the AFO provided and left it at that. It was sort of uncomfortable for me because I had never had a complete stranger ask me about it before. Granted, I have only had the AFO since March so it was relatively new at the time. The UCB is hidden so no one would even know I was wearing it unless I took my shoes off.
How do people handle those types of questions from the public? I felt like it was sort of an intrusion on my personal space when she asked me about it.
</p> Current Mood: cheerful
Hello. I'm well on my way to being "all bionic," I guess. LOL! I have:
- CPAP (continuous positive air pressure) for breathing at night since I have sleep apnea. I've been using this since 2001, and it has revolutionized my life.
- Digital hearing aids in both ears, which I wear at times depending on the acoustics and the state of my hearing. Echolocation with them is taxing for me, so I don't use them for outdoor travel. I do find them necessary at times to understand speech clearly; but since I wear earbuds to use my screen reader while taking notes in class I often don't wear the aids in settings where I'm taking notes. This is where it depends a great deal on the acoustics.
- Artificial cornea, received in 2005. I was the third person in the state of Indiana to receive one, and the procedure was just recently (at the time) approved by the FDA. I will soon be having surgery to remove a film that has grown over it and which is preventing me from seeing clearly and utilizing my color contrast perception. The structures in the back of my eyes are damaged, so my vision is very poor anyway; but what I do have is helpful.
- Inhalers and nebulizers: I've been on them since 1995. These don't really count since they aren't on me at all times; but they're sort of in the middle between devices and meds. I can't really survive without them, unlike my meds, and my insurance keeps deciding to tell me they want me to take fewer meds or use over-the-counter remedies. They don't seem to understand that some people really do need the asthma pill and several inhalers because their asthma really is that bad.
Current Mood: awake
I think that's all.
This community sounds really interesting. I am visually impaired and also have mild cerebral palsy. I use an Ankle Foot Orthosis (AFO) on my left foot for ankle support and a UCB (University of California Berkley) orthotic on the right foot. I have used a UCB for about 10 years but have only recently started using the AFO. When I started using the AFO, I noticed a significant reduction in pain, which made me very happy.
Current Mood: cheerful
I look forward to reading more posts.